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Pharma helps foot bill for US$750,000 drug, but seeks personal medical info in return

Max, who is suffering from spinal muscular atrophy, a rare disease, is taking Spinraza, a drug that has a staggering price tag of US$750,000 for the first year and US$375,000 annually after that.

Derwood,United States

KRISTEN Lasko cried tears of relief in late December when she read online that an experimental drug that could help her 3 1/2-year-old son, Max, had finally been approved. Ms Lasko and her husband, Jonathan, quickly pivoted to getting their cheerful, blonde boy...